Turns out, the pump was not to blame for my recent neuro woes (neurwoes?) I’m not totally convinced that the pump isn’t somehow involved, but it appears that I had a small bleed at my resection site in the Pons region of the brainstem.
some of the symptoms (the excruciating pain in my ass muscles, the temperature fluctuations on random areas of my body, and the increase in spasticity…
ITEM! I’ve just now (unless you read this after 7:23 on Friday, February 13th. Then it’s the date/time you’re reading this minus the above mentioned date/time) found the cause of the hemorrhage, methinks.
You see, I was about to mention increase in blood pressure after “increase in spasticity”. My blood pressure shot way up. This probably aggravated the small bit of cavernoma, causing it to bleed ever so slightly.
So let this be a lesson to you – if you do trunk rotations, DON’T let the catheter from your baclofen pump pop out of your spine. If it does, DON’T let your blood pressure spike. If that happens, DON’T let the pressure get to your brainstem. If you DON’T heed any of these warnings, DO go to Zale Lipshy University Hospital, ask for Dr. Jonathan White and get on a low dose of ‘roids to reduce the swelling. Next, DO start with therapy exercises, because the ~18 month window of best recovery has officially opened.
You might try something like this –
Next, be prepared to eat a LOT, because ‘roids make you ravenous!