This will be post 102. I’d hoped to mark the occasion of my 100th post by giving away 100 pillowcases or some such thing, but I let the landmark pass me by.
But, FEAR NOT, internet! Who says post 102 can’t be treated with great fanfare? After all, it’s higher than the oft celebrated 100.
To mark this monumental occasion, I thought I’d look back through my posts and talk about how far I’ve come. Isn’t that a wonderful idea? OF COURSE IT IS!
To give me some direction, I’ll create a list of 100 things I’ve learned from living with a TBI and reference posts that relate. I’m not going to list all 100 right now. Rather, I’ll break them into sets of 10 over the next several weeks.
Before I start I need to share something. For whatever reason, I haven’t been in a funny mood lately.
That doesn’t mean I’ve been a grump. For purposes of this blog that means I’m going to approach this list from an informational point of view.
You see, others with brain afflictions have been asking for my input. I’d like to slant this list more as informational rather than funny. I can’t promise some funny won’t ooze out like so much puss from a blister. What I’m trying to say is, read and be informed, dammit!
That said, here goes 100 things I’ve learned, one through ten –
1. Patience – I didn’t even look through my blog for this one because if there’s one thing that permeates your life after a TBI, it’s slowness. I don’t think it’s an accident that ‘weight’ and ‘wait’ are homonyms.
Listen, I’ve been through YEARS of rehab. A very popular item for physical therapists working with individuals with ataxia is the ankle weight. I’m getting off topic here.
The point is that everything takes longer. For instance, I fiddled with a caribiner clip and the loop on a water bottle for about three minutes on Friday. I know that doesn’t sound long, but to Ta-Ja (Taskmaster Jarrett – more info. HERE ), it was an “egregious unsanctioned activity”.
I’ve become a bit neurotic about maximizing my time. In fact, I poked fun at myself for the silly ways that I make/save time (see more HERE, HERE, HERE & HERE).
You’ve been very patient if you’re still reading. What I’m saying is my life is full of tedium – gotta be patient.
That one was too long. I’ll do more better, I swears.
2. A thing or two about Neuro-anatomy: Early on, I learned all that I could about my affliction to be my own advocate. I have continued educating myself because I’m interested, there’s much to know, I wish to advocate/educate (eduvocate? Advucate?) others and because I get to learn and use big words like “proprioception” (the brain’s perception of where the limbs are).
I’m getting carried away again, read more about my understanding of the brain HERE and HERE
3. Know your body: It’s true what they say (aside: who are “they”?), the body is a temple. In the same vein as the previous point on this list (previoint?) , I believe that one should be mindful of the things one puts into/subjects one’s body to.
This is an overused cliche, but it’s spot on – think of your body as a car. If you put crap gas (heh, poop) into the car it’ll ruin like crap. With the body/temple, the same principle applies.
I don’t think I’ve ever written on this topic directly – you’ll just have to take my word for it. Also, here’s a picture –
4 & 5. Therapy axioms – “slow & steady wins the race” and “nose over toes”: TJTW (The Jarrett That Was – more info HERE and HERE) was a rabbit, not always on the move, but very capable of keeping up with or exceeding the speed of life.
This part of TJTW has morphed into Ta-Ja (Taskmaster Jarrett, mentioned above). I had to learn to slow down, that speed is no longer an option if I wish to do things right. I still struggle with this concept.
In essence, I’m a rabbit stuck in a turtle’s body.
“Nose over toes” is a simple rhyme that helps one with bad balance stand up. I’ve also learned that this quip helps me to know where my center of gravity is.
OK, folks. I know that I said that I would list one through ten, but the intro and the first five have already made this post far too long to fit into one post. Henceforth, I shall try not to be so verbose and just give the “straight dope”. I will post five through ten tomorrow. If you would like for me to expound upon something, leave a comment.
Thank you for you insight.
My really good friend suffered a major brain injury and whilst we work through rehab (and have extremely lucky in his recovery), its such a long road, and its hard to hear his frustration as he tries to re-emerge as a completely new person and personality. Thank you, your insight is invaluable… And great blog!!
Thank you for your comment. I’m glad to offer my experience to help others. Sorry for the delayed response. Your friend in any kind out therapy? What are his/her symptoms?