It’s nearly the fourth anniversary to the day of when I went to the ER and a CT scan found a cavern in my mind. The very odd thing is that this past Friday – the very DAY I went to the ER (for the record: Day- Friday, date- May 22nd, year- that foul year of our Lord, 2009), I started experiencing double vision – not an initial bleed symptom for me, but has been for many (EXAMPLE). It was only a few weeks after the bleed and for a month or so onward that I saw two of everything.
All the more perplexing is the fact that I feel no other symptoms. I have an electrical feeling in my head every once in awhile – seems to me that if it were a bleed, it’d be non-stop pain that only gets worse.
I want to think it’s nothing, but what else could it be?
Expecting the worst, I’ve tried to spend as much time as I can with my daughter. I lost enough time with her the first…uhh, time. I got her the Skylanders: Giants starter pack for the Wii. We played that for most of the day yesterday – should’ve been playing it on Saturday, but the neurosurgeon on call at UTSW suggested I rest for the…uhh, rest of the day. I just can’t bear the thought of missing anymore time with her (that’s right, she’s a girl that LOVES Skylanders).
It turns out that my double vision might be the result of medication changes. Even if that’s the case, I’m taking this as a kick in the rear to love on my kid every chance I get, and to lighten up on myself. The silly stuff I write about with Taskmaster Jarrett can be funny, but it’s exhausting being so concerned about every single second. With that I offer this –
TBI is…Take a Breather before getting Inundated – Eventually, being productive became less about the quality of work I was producing and more about if I had started the task efficiently or if I had gotten enough done (quantity). It was only recently that I realized that I was more concerned about the number of things getting done and how fast, rather than taking a minute to make sure that I was happy with what I was doing.
That’s all for this week, I’ll make more jokes next week, promise.
Love your post ! Hope your double vision is better tomorrow ….otherwise, we are heading to the ER!! Love you , jarrett! Stay positive and give q a hug for me!
Excellent blog! You are exactly right, time is precious and you can’t go back. Live in the moment! Hang in there! Everything will be ok!!
Thank you for always supporting me sister
I hope things start getting better for you Jarrett!
Little by oh so little. Thank you!
I too get those “electrical” sensations from time to time, and I’ve noticed it usually occurs when I haven’t had enough sleep or I miss a dose of meds. It will be 8 years on the 7th of June when I had my ccm removed, and I still deal with issues popping back up, eventhough it’s been removed, and all of my MRIs since have been “normal” (besides the gaping 3 cm crater left in it!!). Good luck, and I love your blog!
Thanks for reading and commenting, Melanie!
Will you provide more details? Location of CA, symptoms, surgeon, meds, etc.?If you don’t want to broadcast this info., my e-mail is email@example.com. I’m especially interested in the “issues popping back up.”