As I mentioned in my last post, I have brain surgery on Sept. 3rd.
I am taking the week leading up to the date off from rehab.
I am scared, very scared. Yesterday in the education group, we discussed the parts of the brain. For me, that was a reminder of the vital functions the brain stem performs.
On the plus side, I get a haircut…more like THE haircut, as there won’t be any hair left. I would say it’s free, but it’s anything but.
The evil Internet informs me of the immense pain after surgery, the deficits afterward and the grammar problems I will have when it’s over ( or so it appears, people on the Internet have lousy grammar…they say it’s only the Internet, but where else do people publish writing for such a wide audience?).
The idea of having this surgery inspires a great sense of loneliness. I know many of you would do whatever you could to see to my recovery, but I have to face this obstacle alone. When I go under I will be in the hands of the surgeons (I hope they sleep well and have a nice breakfast!). This should not suggest I don’t appreciate all the help I have received. I owe it to many of you for making it as far as I have.
Sorry for the delay…if I don’t think people are reading this blog much so I am more reluctant to post on it, holla if you wit me!
Everything has gone according to schedule so far, I couldn’t have asked for a more punctual rare brain disorder. I came home to stay on Aug. 7th and have been riding in a Pate provided transport (a Chevy Venture) to therapy everyday.
I have moved to the ILS (independent living skills) area for more distraction and “real world” type setting. I spend my day preparing lessons, being psychoanalyzed or working out. We also have a once daily education group, where we learn about brain injuries (and promptly forget, because we all have brain injuries :D). What was I talking about? Oh yeah; every Thursday I give a movie synopsis and review…I already forgot the films I reviewed. Okay, I have really beaten the “brain injury forgetfulness” act to death. Last Thursday I did Julie & Julia and this week I reviewed The Watchmen. Both are great, go watch them, dammit.
To answer everyone’s yet-to-be-asked question the answer is “yes, if you fight for me you get to kill Englishmen.” Oh wait, I mean, yes, I am happy to be home. I do what I can to help out, such as eat up all the food and flush the toilet when I’m done…you know, but there is a lot to be done. Jessica has been very gracious and supportive through this ordeal and is always thankful for the things I do manage to do.
At this time, I get around using a cane. I can walk without it, but need it for those gusts of wind that only I seem to feel…strange. I still have double vision. I wear a patch most of the time to single everything out. Lastly, my voice sounds like I just ran a marathon; I sound winded and tired. The latter two are the most bothersome.
Next up, surgery. I have brain surgery scheduled for Sept. 3rd…I will blog more about it shortly (preferrably before surgery, b/c my brain seems to have a profound effect on thinking and typing).
My time at Pate and away from home is coming to a close. This Friday, I will go outpatient. As far as I know, I will be picked up and brought to Pate every weekday at first and gradually taper off.
I walk with a cane or independently now. Without a cane, I would look like a mummy if I stuck my arms out…but it’s walking. I do mostly physical therapy as cognitively I haven’t lost much if anything. Physical therapy consists of whatever my therapist cooks up (lately its been lunges), leg biking, treadmilling and what I can best describe as yoga (contorting my legs and midsection into various uncomfortable positions).
Otherwise, I make preparations for the coming school year or test my reaction time on the computer on a program called VMR to earn driving privileges back (this way I don’t run into the little yellow block).
I have another MRI and appointment with Dr. White on August 18th.Hopefully, I’ll be ready for surgery at that point and can get it scheduled ASAP. After that, more rehab (yippee!)